There are more than 7,000 different rare diseases, collectively affecting more than 350 million people around the world. Given their rarity, these conditions are difficult to diagnose and treat. Patients can endure a long journey involving specialty doctors, tests, and misdiagnoses and extremely costly treatments. Rare Disease Day always takes place on the last day of February, i.e. 28th February, a month known for having a ‘rare’ number of days. This day provides an important opportunity to shed light on the impact that these frequently debilitating diseases have on patients and their families.
Considering this, Sanofi in collaboration with TerraBiz and BondPR is hosting a webinar on Friday, 5th March, in the form of a Panel Discussion. The objective of the webinar is to get key Government officials, Healthcare Professionals and Researchers of Pakistan on board to highlight the issues around rare diseases in Pakistan & the need for a Government policy and budgetary allocations for the rare disease sector.
Rare Diseases all over the world have costly treatments, hard to access facilities and often misdiagnoses which then lead the patient to overdue treatments and worsening conditions. Not to mention, extreme financial stress for the guardians. In a low economy country like Pakistan, these obstacles can prove to be a tremendous burden on the people suffering through any rare disease.
Through this Panel discussion, we aim to bring important government officials, healthcare professionals and professors on an online stage and engage them in dialogue for advocacy over government policy reforms and budget allocations for this unique cause.
Dr. Faisal Sultan
(Special Assistant to Prime Minister on Health)
Prof. Dr. Huma A. Cheema
MBBS Pb, MRCP (UK), DPGN (University of London), Pediatrician Pediatric Gastroenterologist
Mr. Atif Qureshi Watch Video
President Lysosomal Storage Disorders (LSD) Society Pakistan
Dr. Yasmin Rashid
Provincial Minister of Punjab for Primary & Secondary Health, Specialized Healthcare & Medical Education
Amber Rahim Shamsi
Journalist and TV Anchor
For further details, please contact us at
+92 336 390 4924 | +92 300 213 3849
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