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Overview

There are more than 7,000 different rare diseases, collectively affecting more than 350 million people around the world. Given their rarity, these conditions are difficult to diagnose and treat. Patients can endure a long journey involving specialty doctors, tests, and misdiagnoses and extremely costly treatments. Rare Disease Day always takes place on the last day of February, i.e. 28th February, a month known for having a ‘rare’ number of days. This day provides an important opportunity to shed light on the impact that these frequently debilitating diseases have on patients and their families.

Considering this, Sanofi in collaboration with TerraBiz and BondPR is hosting a webinar on Friday, 5th March, in the form of a Panel Discussion. The objective of the webinar is to get key Government officials, Healthcare Professionals and Researchers of Pakistan on board to highlight the issues around rare diseases in Pakistan & the need for a Government policy and budgetary allocations for the rare disease sector.

Objective

Rare Diseases all over the world have costly treatments, hard to access facilities and often misdiagnoses which then lead the patient to overdue treatments and worsening conditions. Not to mention, extreme financial stress for the guardians. In a low economy country like Pakistan, these obstacles can prove to be a tremendous burden on the people suffering through any rare disease.

Through this Panel discussion, we aim to bring important government officials, healthcare professionals and professors on an online stage and engage them in dialogue for advocacy over government policy reforms and budget allocations for this unique cause.

Panelists

Dr. Faisal Sultan
(Special Assistant to Prime Minister on Health)

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Prof. Dr. Huma A. Cheema
MBBS Pb, MRCP (UK), DPGN (University of London), Pediatrician Pediatric Gastroenterologist

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Mr. Atif Qureshi Watch Video
President Lysosomal Storage Disorders (LSD) Society Pakistan

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Dr. Yasmin Rashid
Provincial Minister of Punjab for Primary & Secondary Health, Specialized Healthcare & Medical Education

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Moderator

Amber Rahim Shamsi
Journalist and TV Anchor

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Registrations

For further details, please contact us at

+92 336 390 4924 | +92 300 213 3849

rare@terrabizgroup.com

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    Dr. Faisal Sultan
    (Special Assistant to Prime Minister on Health)

    Dr. Faisal Sultan is the Special Assistant to the Prime Minister of Pakistan, during the coronavirus pandemic he was set off as the cornerstone of the current issue COVID – 19. Prior to this he served as a consultant physician and Medical Director in Shaukat Khanum Memorial Cancer Hospital and Research Centre. He later became the Chief Executive Officer of Shaukat Khanam Hospital 18 years from now. Dr. Faisal obtained his higher education in MBBS from King Edward Medical College in Pakistan and practiced in Internal Medicine from the University of Connecticut in the United States and Infectious Diseases in Washington University of School and Medicines, certified from the American Board of Internal Medicine in Internal medicine and Infectious Diseases.

    Prof. Dr. Huma A. Cheema
    MBBS Pb, MRCP (UK), DPGN (University of London), Pediatrician Pediatric Gastroenterologist

    Huma Cheema serves as Head of the Pediatric Gastroenterology Department at the Children’s Hospital of Lahore. For many years, she has been contributing to medical progress in Pakistan and has pioneered the discipline of Pediatric Gastroenterology-Hepatology there.

    Throughout her studies, Huma established a brilliant academic record – receiving recognition as a top graduate of Fatima Jinnah Med University and excelling at her examinations at Punjab University in 1984 and London University in 1995. After her studies, she trained at Guy’s Hospital and St Bartholomew’s Hospital, as well as the Great Ormond Street Hospital (formerly known as the Hospital for Sick Children) in London. Huma is also a world-renowned researcher, with more than 80 research publications & book chapters in international journals – truly spearheading medical insights for patients around the world.

    Mr. Atif Qureshi
    President Lysosomal Storage Disorders (LSD) Society Pakistan

    Atif Ejaz Qureshi is the President of Lysosomal Storage Disorders Society Pakistan, a nonprofit organization working to raise awareness for rare disorders. The organization also provides genetic counseling to affected families and campaigns for early diagnosis and effective therapies in Pakistan.

    Atif got involved in the rare disease space and decided to advocate after both his daughters were diagnosed with Gaucher disease. He is currently working with a commercial bank as a full-time employee and voluntarily working on multiple projects with pharmaceutical companies and global patient groups.

    Dr. Yasmin Rashid
    Minister of Punjab for Primary & Secondary Healthcare and Specialized Healthcare & Medical Education

    Yasmin Rashid is a Pakistani politician and social activist who has been a member of the Provincial Assembly as Senior Primary and Secondary Healthcare/Specialized Healthcare and Medication Education since August 2018. In 1984, she moved to the United Kingdom and enrolled in the Royal College of Obstetricians and Gynecologists from where received a MRCOG degree in 1989 and a FRCOG degree in 1999. She served as the President the Pakistan Medical Association from 1998 to 2000. She served as president of Pakistan Medical Association Lahore chapter from 2008 to 2010 and has been the chairperson of the Task Force Women Development, and chairperson of the Women Health Committee in Punjab.

    Amber Rahim Shamsi
    Journalist and TV Anchor

    Amber Rahim Shamsi is an award-winning multimedia journalist who is Head of Communications at a policy think tank Tabadlab. She hosted current affairs shows on DawnNews and Samaa TV, and was a bilingual reporter and producer at the BBC World Service.